Tuesday, August 24, 2010

MORE....are you really sure Doctor...more?????

August 24, 2010

Tomorrow I start another round of Physical Therapy, this time to work strictly on my neck and upper back. I should be excited. I mean at least we're moving forward...right???? Forgive me for my sarcasm but I cannot seem to get my mind wrapped around it and I only have T minus 24hrs to get it that way. This is my dilemma....

My neck and back HURT, almost all the time. I would actually guess it's more like 99% of the time. It's a very difficult job to keep 'morale' up everyday and 'keep on truckin'. I don't have the ability to lay in bed all day and 'nurse' my wounds. It's not my style even if I did. I am a mom, first and foremost. It's what I do and I am still refusing to let all this define me or my children's childhood. I have such strong convictions about being a mom. I've been a working mom, I've been a stay at home mom. I've been an avid active mom and I've been a sick mom. One thing that hasn't changed through all of that is that they deserve the very best of me.

I know and realize with such strong certainty that there are so many in this world that have it far worse than I (and that thought is never far from my mind) but, with that said...IT FREAKIN' HURTS! The pain is intense and I'm telling you, it wears a person down. Sometimes I just want to scream...IT HURTS and BAD. You'll be glad to discover that I frequently refrain from screaming ;) I'm so sick of the pain and even sicker of no plan. Have I mentioned I NEED A PLAN?! :) Some might say, "Francis, isn't physical therapy a plan?" and I would say to that, "excellent question! But no, in this case, it doesn't feel like one". It feels like a 'we can't figure all this out yet so let's throw some physical therapy in there to see how that works...plan'. And I'm just not thrilled.

Physical Therapy is tons of work and let me just be the first to say, I'm not afraid of some hard work! I actually welcome it. If someone were to tell me "Francis if you tow this school bus over the Hathaway Bridge (a local bridge) using nothing but yourself and this rope, you will be cured of this pain" I would do it. In a heartbeat actually. Game on. I would train and train and train some more and figure out how to get that damn school bus across that damn bridge. It may hurt like the dickins' but if the end solution was guaranteed or even a strong likelihood that would be that I was better it would be more than worth it. So the work is not the problem. The problem is what the work brings....MORE PAIN! It hurts so bad. Physical Therapy makes it hurt so much worse with no promise or likelihood of a positive end result. So for the next 4-6 weeks it will not be hard to keep morale up, it will be like pulling teeth to keep morale up. I just cannot seem to get excited about that. If I were to be completely honest I would venture to say I'm dreading it.

Picture of the hathaway bridge so that you can completely have an acurrate visual image of the lengths I am willing to go to :)

Problem is...that's just not me. Dreading doesn't sit right with me, it's not comfortable. I need to be positive. I need to be 'up'. Not for my 3 readers out there (though I love you dearly) but for me. For my little darlings. I desire to show them how to fight the good fight. How to stay in the positive when everything in nature is dragging you down. I do allow them to see that sometimes that it's just tough (I don't want them to have any allusions of super woman, not that there's any chance of that right now). I allow them to see my vulnerability. Strictly because I don't want them to think I just breezed my way through this (no doubt of that lately :). I want them to understand you have to work to be where you want to be, even if what you want is just simply to stay positive. It seems like a silly goal and in all my life I would have never in a million years guessed that this is where I would be right now...trying to not loose hope. To not give in to what is starring me right in the face everyday. But hey, there's not much in this situation of mine that I would have guessed.

Maybe that's the way it's suppose to be. Actually I'm sure that's the way it should be. You shouldn't know what's ahead. Although, right now I would love to know if health is in my future and would be willing to pay most anything to some fortune teller to tell me that :) but again, I think it's best to not know. If I were to know right now that this struggle would go on and on and on and on and on, I can't even imagine what my outlook would be. I truly believe that my brain surgeon allowing me to have ideas of grandeur of returning to my running and spin schedule just a mere 6 weeks after surgery was the best thing he could of allowed me to believe. I laid on that operating table, not thinking about a year long plus recovery/journey, but thinking of feeling the wind on my face once again. Thinking of the unbelievable feeling of completely a tough run. It didn't take long, after surgery, to realize that that goal was a bit of a stretch, to say the least. About 30 maybe 45 seconds after I awoke from several hours of BRAIN SURGERY, I think I got the picture ;) After the fact, when I asked him about that promise he said simply, "Well, it was what you needed to believe". And he was right I did. I needed to believe that fact almost as much as I needed my brain tumor removed. It was essential to keep me going. It was essential to get me calmly on that operating table with no assistance of tranquilizers or restraints. It was crazy. It was a crazy idea. It was a looney tune idea. Yes, everyone, including him, thought I was NUTS but I needed to delude myself. Right now I could use some more delusion. ;)

I wish I was still that naive. I wish I had not realized the harsh reality so very many times. I wish I could still conjure up naive ideas of grandeur. Today, I only wish I could naively believe this physical therapy could and would cure it all. It's hard though, unbelievably hard. I don't even really know how to describe how hard. I know very well that in T minus about 36hrs I will be writhing in pain from the work that we did. I am as sure of that as I am that I have a right arm ;) Not because I'm thinking negatively but because I've been here and done this before.

I guess in some ways I haven't completely lost my positivity because the honest truth is that I do have hope. Hope that this will work. OK, no, not that this will work but that it will help. If I did not have that hope why in the world would I even go and torture myself. It's either that I have hope or have completely lost my mind ;) Which frankly...could be the case.

I am still very much in that BRING IT ON place with myself and this situation. I guess, again, if I'm honest it's a Ehhh...bring it on, I think, maybe?! :) How do get pumped up to hurt. If any of you know, please, clue me in on that ;)

I will persevere. I am going to get my mind wrapped around it in the next 24hrs (and counting). I will do this. And not hesitantly. I will throw myself into this like it's going to breathe life into this body of mine. In the next 24hrs I will somehow convince myself that this could and will work. It's the only way I know to go about things. If I can't do that, then why do it at all?!

I have 24 more hours to that...right?! ;)

This Brain Tumor Chick is heading back to the trenches and has to find the courage to jump in with both feet...YIKES! Stay tuned, the unfortunate adventures of this brain tumor chick continue.


Anonymous said...

Once again my dear, you bring such a sense of perspective to my life and make me even more thankful for a day without pain.You are facing with grace, what would totally defeat others. Don't know what you believe about scripture so I will just ask if I can send you some healing scriptures to pray outloud? The Bible tells us to use the Word, that it is so much more effective than praying in our own words.
As always, I love you. jane

Haleyuns said...

As I was reading this I was thinking you need a playlist of songs that will "pump you up". Like eye of the Tiger :) If I were you I would be dreading physical therapy too. :( What I love about Faith is that you only have to have a small amount for it to work. You don't have to have enough to move a bus, but to get in the car and drive to physical therapy. Start with that and go from there. I love the primary song that goes, "Faith is like a little seed, if planted it will grow...." Maybe sing that when you have no hope at all. We all love you and wish we could do this for you.

Anonymous said...

If you would just take my advice and drink 24 mountain dews and then do something against the law you would feel better. ha ha ha
I sure love you and am just a call away if you need me
Love you

Jessica Buss said...

I too am 30 and a mother of two boys. I was diagnosed with a brain tumor just three weeks after having my son and a week after my 30th birthday. I too am a stay at home mom who thankfully had family nearby to help me during my treatment and rehab. I had the tumor removed february 25, 2010 - so I just passed my 6 month mark. I spent 6 weeks at the hospital - half in ICU/CCU and the other half in rehab. I am learning to walk, talk, and swallow again. I finished OT (occupational therapy) in July but still do physical and speech therapy three times a week. So I sorta understand where you are coming from. I will be praying for you as you continue to recover! Blessings, Jessica www.bussjessica.blogspot.com

Le Garçon Particulièr said...

Hi, My name's paul, and my mum, who's 55 was diagnosed with brain cancer 2 weeks ago. she first suffered a sever migraine, and then we had an MRI and a CT scan confirming the brain tumour. I'm deeply depressed but I have faith in God. The neurologist called asking us to go meet with them this friday. so we've been made a priority.. I'm so worried right now. My sister, who's a med student says it's most likely a benign tumour, but i'm still afraid for the worst. i guess all i can do now is to pray and cherish the time i have with my mum.

You're an inspiration and reading your blog has made me very hopeful. hope you're doing well.


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